The EDS Lass
Welcome! The EDS Lass is where Kate (ie The EDS Lass), a researcher, writes articles and posts about living with EDS (Ehlers-Danlos Syndrome), human rights in healthcare, life and travel, and documenting her medical journey.
The EDS Lass has articles on relevant topics (including the law and human rights in medicine, healthcare systems, EDS and other conditions), blog posts on life with EDS, sharing life and adventures, practical tips and tricks managing EDS, lifestlye posts about travel, home and recipies, as well as blog posts documenting Kate’s medical journey.
ARTICLES
Articles written on relevant topics including the law and human rights in medicine, healthcare systems, EDS and other conditions and more. View all articles.
Accessing Your Records; Subject Access Requests
The EDS Lass writes about life with EDS, articles on relevant topics including human rights, and blogs about lifestyle and…
Human Rights in Healthcare
The EDS Lass writes about life with EDS, articles on relevant topics including human rights, and blogs about lifestyle and…
Visceroptosis (Internal Collapse)
The EDS Lass writes about life with EDS, articles on relevant topics including human rights, and blogs about lifestyle and…
Informed Consent
The EDS Lass writes about life with EDS, articles on relevant topics including human rights, and blogs about lifestyle and…
Postural Tachycardia Syndrome (PoTS)
The EDS Lass writes about life with EDS, articles on relevant topics including human rights, and blogs about lifestyle and…
Ehlers Danlos Syndrome (EDS)
The EDS Lass writes about life with EDS, articles on relevant topics including human rights, and blogs about lifestyle and…
LIFE WITH EDS
Blog posts sharing life and adventures with EDS, as well as practical tips and tricks managing EDS. View all posts.
EDS &… Being Misunderstood
Being or feeling misunderstood is an inevitable part of life. For those of us with conditions, there are many ways…
# Diary – 12 February 2026; Home
I felt very EDS-y, so I am having a home day. I am staying home and the making the most…
EDS &… Plans
One of the most signigicant life-impcting things I have found very tricky and frustrating is the difficulty in planning, with…
EDS &… Food
EDS can impact the GI system and effect food intake. I have a number of symptomatic structural issues. Despite this,…
Celebrating ❤
I loved the fun, sunny day on the beach with family, having a pinic and paddling, celebrating the completion of…
# Diary – 27 August 2024; Paris
I am in Paris, enjoying exploring in the city in the sun. I have visited different areas of Paris, enjoying…
LIFESTYLE
Blog posts sharing lifestyle content, including travel, home and recipies. View all posts.
Recipe: Pesto Pasta
This vibrant vegan pesto pasta is fresh, flavorful, and incredibly easy to make. With walnuts, cashew nuts and pine nuts,…
Helsinki, Finland
I was fortunate to have time to explore Helsinki. The city and nearby islands are beautiful, giving a mix of…
Paris, France
Paris is such a lovely city to wonder around, in various districts such as the 9th and 18th district, and…
Paris (Amélie sets)
I visited locations in the brilliant film Amélie, including the cafe, the grocery store, the carousel, Basilique du Sacré-Cœur, the…
Barcelona, Spain
Barcelona is a lively, gorgeous city. I visited years ago, but have not had the time to explore.
MEDICAL JOURNEY
Blog posts documenting the medical journey, covering pre-diagnosis to present, fighting for appropriate healthcare. View all posts.
Medical Journey – Full Summary
A chronological summary of my medical journey to diagnoses of EDS, POTS, visceroptosis and mesenteric ischemia. The summary is kept…
Seeking an Ileostomy…
I am seeking surgery to resolve the effects of structural and vascular issues (visceroptosis and mesenteric ischemia) which causes ‘loaded’…
Colon & Stomach Surgery (2022)
In 2022 I had GI surgery; part of my right large colon was removed with the remainder stitched (pexied) up,…
Visceroptosis & Mesenteric Ischemia Diagnosed (2021)
Visceroptosis and mesenteric ischemia were diagnosed in 2021. The conditions cause severe GI symptoms.
Undiagnosed Infection & EDS Fatigue (2021)
I had worsening fatigue and weakness from 2016, extreme by 2020. It turned out to be a long-term undiagnosed infection
POTS Diagnosed (2020)
After a number of years of PoTS symptoms, I was formally diagnosed in 2020, and was able to seek medications…
ALL POSTS
All articles and posts on this site, in one place. View all.
EDS &… Being Misunderstood
Being or feeling misunderstood is an inevitable part of life. For those of us with conditions, there are many ways…
Recipe: Pesto Pasta
This vibrant vegan pesto pasta is fresh, flavorful, and incredibly easy to make. With walnuts, cashew nuts and pine nuts,…
# Diary – 12 February 2026; Home
I felt very EDS-y, so I am having a home day. I am staying home and the making the most…
Medical Journey – Full Summary
A chronological summary of my medical journey to diagnoses of EDS, POTS, visceroptosis and mesenteric ischemia. The summary is kept…
EDS &… Plans
One of the most signigicant life-impcting things I have found very tricky and frustrating is the difficulty in planning, with…
EDS &… Food
EDS can impact the GI system and effect food intake. I have a number of symptomatic structural issues. Despite this,…
❤ Thank you for reading & SHOUT OUT TO EVERYONE living with conditions
There is much to enjoy, but life can (and is) often hard… additionally so with condition(s). Many of us live to the max, coping and compromising… its not easy. Here’s to everyone living with conditions and life struggles; you are not alone.
The EDS Lass 